Share Your TSS Story

I was recently asked why it’s important for survivors of tampon related Toxic Shock Syndrome to share their stories publicly. And, why it matters if family members of those who died because of it come forth and share their stories.

It matters because it’s only when survivors (or family members) share their experiences that tampon related Toxic Shock Syndrome comes onto the radar.

Most are not aware that TSS is once again claiming lives, is once again a threat to the welfare of young girls and young women until they visit this website.

By sharing your tampon related TSS story, you open the door to the opportunity to help keep it from happening to someone else.  By sharing your story, you enlighten others and enable them to make menstrual choices that avoid the risk of tampon related TSS.  By sharing your story, you raise awareness about this horrible thing and the dangers that traditional tampons pose to women.

You have the power to save lives and to prevent what happened to you from happening to other innocent women.



SHARE YOUR TSS STORY – If you have experienced tampon related Toxic Shock Syndrome, you have a story that needs to be told! TSS is a real threat to young women today and your story has the power to impact the lives of countless young women and the potential to save lives as well.

Submission Guidelines – Submit your story in the body of an e-mail or as MS Word document (1000 words or less) along with a photo of yourself (at the age you were when you suffered from TSS) to Suzan: You ARE Loved’s Director of Connectivity (suzan @ – without any spaces).  Accepted content will be published on the stories portion of our website.

About You ARE Loved – We are a nonprofit organization committed to raising awareness about tampon related Toxic Shock Syndrome (TSS) and providing factual information about menstruation.  The ARE is a reminder of Amy Rae Elifritz who lost her life (read Amy’s story and her mother’s powerful post Project Shocking).  Learn more about TSS via our informational brochure and the accounts of many women who have suffered.

More Information? – Please contact us.


  1. Suzan: I am deeply sorry about the tragic loss of your daughter. I’m a 38yr old woman with a 15 yr old daughter. My mom always warned us against tampons. I never took her seriously, until NOW. I would like to share my story. My period ended 9 days ago. Five days ago I began to experience a rancid, FOUL vaginal odor. I’ve never had any odor issue but I do have a new boyfriend, so I suspected an infection or STD. Also, over the past 5 days I’ve been VERY ill with fever, nausea, headache, extreme chills, muscle aches….like freezing cold (shaking) outside in 99degree heat. Well, this morning I was trying to apply some vaginal cream with my finger , because of the odor, and I discovered an old tampon in there. My period ended 9 days ago so it was in there, buried atleast that long!!!! I didn’t connect the dots in my mind because I have chronic health problems, including short term memory issues. I’m inundated with pain and symptoms everyday, but I have felt especially bad for 5 days, like I was on my death bed. Today I was treated in the ER with IV Fluids and IV antibiotics andsent home with an rx for antibiotic for 7 days. I’m quite sure that I was in life threatening danger on Monday night because that was the peak of the symptoms. I was SO cold in a 78 degree apartment that I had on two sweatshirts with hoods, five blankets and double socks. And then woke up in major pain, took 800mg Advil and was roasting hot and SO achy in the muscles. I already have a PICC Line because of my chonic problems. I thought I had a PICC LIne infection or the flu AND some unrelated vaginal problem because of my new partner. Luckilly, I found the old nasty tampon this morning. and finally I realized TSS. No more tampons in this household!!!!.